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#9 How to Make Your Doctor Listen
If you live with an illness for long enough, you become something of an expert in it – at the very least, in how it affects your body. Sometimes, though, doctors don’t take your expertise seriously. They’re the experts, after all, and they’re used to having the power in these interactions. This is why it's important to learn how to advocate for yourself or find someone to advocate for you.
In this episode of Pill Pop, hosts Silvi and Izzie speak with physiotherapist, PhD candidate, and health communication researcher, Louisa Walsh. They speak about her experience advocating for herself and others as a person with Cystic Fibrosis and a double lung transplant recipient.
Content warning: this episode includes discussions of physical and mental illness, hospitals, medical trauma.
- Using Social Media to Facilitate Consumer Engagement in Health Service Improvement, Louisa Walsh's PhD research, La Trobe University
- Impure Science: AIDS, Activism, and the Politics of Knowledge by Steven Epstein, published 1996, University of California Press
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In this episode
Hosted, produced and edited by Silvi Vann-Wall and Izzie Austin. PhD Candidate, physiotherapist, and lecturer Louisa Walsh is our guest.
Recorded at Studio 757, Melbourne and Silvi and Izzie's respective home offices. This series is produced in partnership with the Wheeler Centre's Signal Boost programme. Mentorship and production support from Bec Fary.
Music: 'Dip Dop' by Barrie Gledden; 'Sad Marimba Planet' and 'More on That Later' by Lee Rosevere. Sound effects sourced from SoundSnap and Klankbeeld.
A transcript of this episode will be available soon.
Silvi Vann-Wall is an audio producer and podcaster, with a strong journalism background. She loves making weird and wonderful audio and is usually found with headphones on. She has lived with a chronic illness for ten years and this informs her current work.
Izzie Austin is a zinester and postgraduate student who grew up in Brisbane with several cats, and now lives in Brunswick with just one cat. They are currently undertaking a PhD in cinema studies and working on Pill Pop – a podcast about chronic illnesses, including their own messed-up pancreas.
An audio road trip for the chronically ill.
Pill Pop is hosted by two chronically ill people – Izzie and Silvi – who take you on a road trip through chronic-illness country. Izzie was diagnosed with type 1 diabetes as a young kid, and Silvi was diagnosed with ulcerative colitis as a teenager.
We've lived the majority of our lives with illness, and now it's time to share our stories with people just like us. So hop on in to the back seat of our secondhand ambulance and buckle up for the trip of a lifetime!
At each Pill Pop Pit Stop, we'll interview a guest about their life with chronic illness, covering everything from the funny, the sad and the flat-out gross. Each episode will take you on a journey – from diagnosis, to finding a good doctor, to accepting that your illness is forever.
For anyone who's wondering what it's like to be chronically ill, we use the power of audio to fully immerse each listener in the body of our guests! It's like the episode of The Magic School Bus Ms Frizzle didn't want you to know about.